DEM BONES, DEM BONES, DEM DRY BONES (Song) …

If someone had told me a decade ago that I’d be getting my mobility back after all these years of being in a wheelchair, I would never have believed them. But, here I am, walking with one crutch indoors, but not outside. However, the irony of this situation is that four weeks ago, I was diagnosed with very severe osteoporosis following a DEXA bone scan where my T-score (-4.5) was almost off the radar. My GP said she’s not seen anyone with this level of bone fragility for a very long time. If I fall, bend or twist, I stand a very high rate of fracturing my spine or breaking a hip either of which could result in permanent disability or paralysis. Bad news.

Having said all that, I’m not giving up on life … not at all. I have to learn to do everything differently and safely. Whether it’s getting something out of the fridge, picking up a bit of fluff from the floor, drying my feet after a shower and other tasks I took for granted before. I have to think before every move, and it’s exhausting sometimes, but I’m not complaining. It could be far worse.

I refuse to let this condition beat me. It knocked the stuffing out of me when I first got my diagnosis, and I was very depressed for quite a while, but now, I’m keeping active by moving around my home more and going to the gym at least two to three times a week and working really hard. Exercise is the key. I’m getting stronger, not weaker, and as long as I don’t fall, I’ll continue that way. I daren’t attempt to set foot outdoors without George (my electric chariot!) or my manual wheelchair for fear of falling on the concrete. There’s no way, after all this hard work, that I want to be back in the position where I can’t wash and feed myself again. I’m come too far.

So, I’m following my specialist’s advice, keeping active, taking medication which should help prevent any further bone loss and being extra careful about my diet. No big deal. That coupled with all my work at the gym should keep dem bones of mine ticking over for some time, I think.

 

 

8 thoughts on “DEM BONES, DEM BONES, DEM DRY BONES (Song) …

  1. I’m not sure whether to congratulate you on your improved mobility (that you’ve really worked for!), Ellie, or just commiserate on the diagnosis. In the spirit of your post, however, I think congratulations are in order. I’m sure you will overcome the problems with a mixture of care and courage, and I’m delighted that you are getting a greater measure of freedom back. All the very best to you! X

    1. Hi Mick. Thank you. Yes, I think the congratulations are probably more appropriate. I’m being very careful with everything I do now. I have to think first and move second, but that’s ok – at least I’m moving more which is a very good thing. I was down at the gym this morning again and worked extremely hard (I’m a bit sore now, but I’ll be fine tomorrow). It’s wonderful to be able to walk with just one crutch leaving the other hand free to carry the important things in life – like coffee! Thank you for your good wishes, Ellie x 🙂

      1. That really does sound like progress, Ellie. Yes, I think the payoff for that progress being the need to take a greater amount of care is probably a payoff you would be happy with. that really is marvellous news! X

  2. I’m so sorry about the diagnosis, but glad that you are more mobile now. And I admire your attitude! You are living your life to the fullest, and that’s really the best that any of us can do. Wishing you the best!

    1. Thanks, Ann. I’m definitely not giving up now having come this far. It’s certainly so much easier being quite a bit abler. I’m enjoying my life and intend to make the most of my new strength and abilities. None of us know when these things might be taken away from us because of age, ill-health or disability, so we have to appreciate what we’ve got while we’ve got it. Thank you for good wishes, Ellie x

  3. Hi Ellie!
    ‘ I’m getting stronger, not weaker, and as long as I don’t fall, I’ll continue that way. ‘
    You are so brave, Ellie.
    I can’t imagine how hard it must be for you to deal with all of this but since you are brave enough to write about it, I believe you are brave enough to overcome it too. You are truly inspiring. More power to you!
    🙂
    Also, I’ve missed reading your posts on WordPress. So glad you are back.

    Take care of yourself.

    Ashwini

    1. Hi Ashwini.

      I’ve just written a long reply to your lovely comment, and when I went to post it, it wiped the whole thing out! :/ In a nutshell, I said thank you to you for having faith in me, and that I just have a very ‘hey-ho’ attitude to my diagnosis now because the alternative was to shut myself away in my house and never come out, but that’s not how I want to live – life’s too short. Thank you for missing me too. I’m so busy these days, and to be honest, I can’t always think of things to post about that would be of interest to anyone else. I need to try and read some of my friend’s posts here too as I’m way behind on that too. I’ll get there – in general, that is. Take care too.

      Love Ellie xx 🙂 ❤

      1. I totally agree with you, Ellie. Life’s too short. I am so glad you have a never-say-die attitude.
        🙂
        You can get back to posting and catching up with your friends’ posts in your own time. There’s no rush.

        Lots of love,
        Ashwini ❤

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