BOWING OUT?

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It’s been a while since I posted (again). I’m finding it more and more challenging to keep up with my blog, and to read my fellow WordPress friend’s blogs too. I’ve been writing here for almost five years now and have published no less than 344 posts. I checked this fact and was quite amazed that I’d been able to write so much.

When I first started writing it was all about my mental health and my history of abuse. I don’t need to go there anymore (thank goodness), and I thankfully, don’t live in that world now either.

I’ve moved on a long, long way since then. I’m busy – a never stop kind of busy which is fine by me. I’m finally enjoying my life and doing so many things that I enjoy and that are enriching my life; expanding my thoughts and opinions; bringing peace to my soul and joy to my heart. I am fortunate enough to be able to listen to music that I like and read books that interest me. I’m finally happy.

I’m still volunteering at the university, and I’m continuing my studies. I’m going to the gym regularly, and I see significant progress in my mobility. I’m able to walk a few steps unaided now, only indoors as it’s not safe for me to walk outdoors without support because my bones are so fragile that if I fell on the concrete, I’d possibly permanently damage myself. The last thing I need is to have to go back with my progress, so I’m ultra-ultra careful.

This is all leading up to the fact that I may have to bow out of the world of WordPress. I’ve tried (and managed for a short while) to write more regularly, but seem to always fail abysmally. I often burn the midnight oil, and I am in fact burning the candle at both ends. As it is, I’m writing this at three o’clock in the morning! Not good as I’ll regret not going to bed when I see the breaking of the sun.

I still so enjoy my writing, but somehow, it doesn’t seem right to pour my thoughts out on paper (or rather, on my laptop) and expect others to be interested when I cannot reciprocate this. And so, I’m seriously thinking of bowing out. Any constructive comments, views, and advice very welcome. Thank you, friends, Ellie x

DEM BONES, DEM BONES, DEM DRY BONES (Song) …

If someone had told me a decade ago that I’d be getting my mobility back after all these years of being in a wheelchair, I would never have believed them. But, here I am, walking with one crutch indoors, but not outside. However, the irony of this situation is that four weeks ago, I was diagnosed with very severe osteoporosis following a DEXA bone scan where my T-score (-4.5) was almost off the radar. My GP said she’s not seen anyone with this level of bone fragility for a very long time. If I fall, bend or twist, I stand a very high rate of fracturing my spine or breaking a hip either of which could result in permanent disability or paralysis. Bad news.

Having said all that, I’m not giving up on life … not at all. I have to learn to do everything differently and safely. Whether it’s getting something out of the fridge, picking up a bit of fluff from the floor, drying my feet after a shower and other tasks I took for granted before. I have to think before every move, and it’s exhausting sometimes, but I’m not complaining. It could be far worse.

I refuse to let this condition beat me. It knocked the stuffing out of me when I first got my diagnosis, and I was very depressed for quite a while, but now, I’m keeping active by moving around my home more and going to the gym at least two to three times a week and working really hard. Exercise is the key. I’m getting stronger, not weaker, and as long as I don’t fall, I’ll continue that way. I daren’t attempt to set foot outdoors without George (my electric chariot!) or my manual wheelchair for fear of falling on the concrete. There’s no way, after all this hard work, that I want to be back in the position where I can’t wash and feed myself again. I’m come too far.

So, I’m following my specialist’s advice, keeping active, taking medication which should help prevent any further bone loss and being extra careful about my diet. No big deal. That coupled with all my work at the gym should keep dem bones of mine ticking over for some time, I think.

 

 

HAVING TO TAKE A BREAK

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Having written my last post, I said that I would shortly write my next post about my two wonderful trips to a seaside town a little distance away. I was very much looking forward to sharing my experiences with you. However, current difficult circumstances have meant I just haven’t had the time or the concentration to write. Nor, I am sorry to say, have I had the time to read all my fellow blogger’s many posts either. I know I have missed so many and for that, I apologize.

This means that I have to take a break for a little while but plan to be back again before long, and then I’ll start rereading your blogs too.

Should I say … please, bear with me … or … watch this space!?

I’ll be back. Hopefully sooner than later …

Love Ellie Xx ❤

TEA AND CAKE

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Today is Mum’s birthday … or, perhaps, I should say, ‘it was Mum’s birthday’. As most of you know, I lost my dear Mum a year ago. It’s been hard; very hard at times. I’ve been trying to heal from my pain, but grief is no respecter of time. Some people get over it in a couple of years, some less, but many more never.

I wasn’t sure what to do today. I wanted to do something special in honour of Mum’s birthday. I finally decided to go to a favourite café of mine to have tea and cake because that’s what she would have been doing at teatime today. It’s a quaint place with lace tablecloths under glass tops, sepia photographs on the walls, brass kettles on old-fashioned cake stands and waitress service as opposed to the usual queue up and help yourself.

I asked for a pot of tea, as opposed to a mug or cup as Mum always, always drank her favourite ‘tipple’ poured from the pot. I’m a great coffee drinker whenever I get the opportunity. It wakes me and my tastebuds up and makes me feel almost human, especially in the mornings. I never usually drink tea –  But, Mum always drank it, but never coffee. Actually, tea’s not bad – quite refreshing really. I chose a piece of carrot cake, one of my favourites, and Mum’s too, and she would have liked this one as it was homemade. She much preferred ‘the real thing’ as opposed to shop-bought ones.

I’d bought a birthday card, strange though it may seem. Perhaps, to buy a card for someone who is no longer here, in body at least, could be seen as rather odd. I feel Mum is here with me in spirit though and especially today. I sat in the café for an hour, writing my words as if I were talking to her. I can’t send it, of course, but I shall keep it with the rest of the items I have that I was able to keep after she passed away. I thought she would approve of me sitting there, having tea and cake and I told her I loved her and missed her so much. I said that I wish she were here with me. And I did.

As I write this in the evening, I am missing that phone call to say, ‘Happy Birthday, Mum’. I realise that she’s not coming back, and they’ll be no more birthdays or Christmases. In fact, they’ll be no more days at all with my Mum, at least not in this life as I know it, but maybe in the next. I hope so.

Happy Birthday, Mum x

CHAMELEON SKIN – TAKE 2

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I intended to write a post today about my son’s final court hearing regarding custody of his children which took place this week but I thought it appropriate, following on from last week’s post, to republish this poem because it explains so well how I feel so much of the time.

When I ‘depend’ on any given person, I become someone who moulds myself into whatever character I think that ‘given’ person wants me to be. In other words, I have become, unwittingly and unintentionally, a chameleon to fit whatever role I think is required. This is an instant response and not something that I have control over yet (although I’m working on it in therapy),  and it is actually totally exhausting as I automatically become an ‘actor’, albeit an unwilling one – it’s really hard work, mentally, pleasing and fitting in with everyone (people-pleasing in a way). This is a desperate attempt to ensure that the person on whom I depend likes/loves me enough that they won’t leave me because, without them, I don’t know how or who to be and feel helpless and abandoned.  I’m aware that this all sounds somewhat pathetic but, for me, it is not only a symptom of my BPD and DPD but the only way I know to survive in my world.

The biggest problem occurs if I find myself with more than one person that I know and they know me, which obviously does happen sometimes, my mind and my body (as in body language) don’t know how or who to be and I usually either end up confused, very stressed and muddled and find an excuse to leave the situation.

 

CHAMELEON SKIN

She is what she is … or is she, indeed?

She’s perplexed, befuddled, embroiled

Lost her mind along enmeshed journeys

She belongs, does she not to this world?

~~~

Is she real or a trickster, a fraud inside?

Not knowing her mind, too caught up in lies

Or perhaps, revealing her open wounds

You win some, you lose some, just look in her eyes

~~~

She’s not without fear though she’s scared of the thrill

The rollercoaster won’t come to an end

She writes her life’s story in ink, so black

You may wonder how her thoughts are penned

~~~

Innocence seen, and innocence gone

A fight in a nightmare; she holds her breath

The howls can be heard from far away

Will she ever return from the brink of death

~~~

You know her, you don’t, you think that you may

She’s a friend, a soldier, blood-kin

She lives or she dies; knowing the shadow side

Unknown, she wears her chameleon skin.

I’ve republished this poem with its image at the top of the page, not because I can’t be bothered to write a different post (as I will write about my son next), but because, as explained last week, this subject is playing very heavily on my mind at the moment and at times, I am very trapped by my own thoughts and need to write. Therefore, please forgive me for ‘rehashing’ a previous post, especially if you read it when I published it back in February 2016, but there is a specific reason (as explained) for doing so at this time.

A final thought: Is there a bit of a chameleon in each one of us if we look carefully enough at ourselves?

Edit: Taking the form of a chameleon is a very common aspect/symptom in people who have BPD or DPD.

LOSING SIGNIFICANT OTHERS

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More loss! How much more? It seems like an endless stream of significant other people in my life have departed or are leaving me. I am devastated and heartbroken. I don’t cope well with what feels like abandonment, especially as someone who has BPD or EID (Emotional Intensity Disorder) where this and rejection constantly loom like some ogre behind my shoulder, threatening to suffocate me.

I very recently lost my Mum (as some of you will know). This bereavement came five years after losing my Father. You could say that I should have expected these losses at some time, given that both my parents were in their eighties. However, this is always a major blow even after taking that into consideration.

Now, other important people in my life are leaving, and it’s beginning to get too much to bear. One of my two main Carers left last week, taking early retirement. Now, Helen, my P.A. and Support Worker is moving on after fifteen years with me. She is taking a different career path, and I will be acutely aware of her absence in my life.

Then, finally (at least for the time being) a very close friend announced yesterday that she was moving to the coast, eighty miles away to be nearer her daughter (we have known each other for nearly thirty years). We’ve had many happy times visiting places of interest, chatting over cups of coffee, pouring our hearts out to one another, and in general, putting the world to rights. We can phone or write, but with neither of us having transport or good health, it is unlikely that we will see each other again.

It’s all beginning to get a bit much, I’m lonely and am fighting hard not to fall into a pit of despair and depression. The friends that I do have seem to be mostly cyber-friends, either on Facebook, Twitter or WordPress. At least, in social media, I could put out some ‘friend requests’, but in real life, it’s not quite as easy as that. I guess if I reach the bottom, the only way to go is up, so I’ll try to hang on to that for the time being. Please, bear with me a little longer.

THE BUSYNESS OF GRIEF

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The funeral was beautiful in as far as a funeral can be thought of as ‘beautiful’. White poppies adorned the wicker casket which was interwoven with daisies and wildflowers and not the sombre, traditional dark wooden coffin that many people have. Mum was a great lover of flowers and plants, and she tended her little patch of garden so carefully over her 86 years. It’s sad to think of it being so neglected now as is the old and empty house which was my home for many decades.

It’s been six weeks since my precious Mum passed away. The sadness and loss will never leave us all, but it’s strange how people differ so much in their ways of dealing with grief. My youngest sister is very tearful and is deeply mourning the loss of my Mum. She’s unable to concentrate on her studies, nor cope with her part-time job. My other sister has travelled home again and has thrown herself into her work. However, she is frequently prone to breaking down in racking sobs and is in need of much consolation from her colleagues.

As for me, it’s as if nothing has happened. I think, if anything, I only feel numb and apart from weeping briefly at the first news of my Mum’s death (and I haven’t cried since that day), I am carrying on with life much as usual. I’m keeping myself very occupied and haven’t really stopped since the funeral. My life is as busy as ever and with assistance, I’ve been concentrating on sorting my house out as much as I physically can.

In fact, over the last two weeks, the whole of the downstairs of my house has been decorated. The builders have only just left and there is a huge mountain of mess to clear up. The smell of paint is lingering and I haven’t quite got used the new colour scheme yet. The new curtains are being put up tomorrow along with the new ceiling lights. It’s been ‘all go’ for a few weeks now and I’ve felt quite excited by it all but somehow, also exhausted in equal measure.

I know in my heart that my frantic busyness is just a way of coping, or perhaps, rather a way of not coping or not wanting to face reality because it is all too painful. However, reality has a way of kicking us in the ribs when we try to avoid it. There are Mum’s possessions to deal with and the house to sell. There is so much of everything to be sorted into heaps of ‘deal with now’ or ‘deal with later’.

There are so many practical issues to deal with that I haven’t had time for emotions. Emotions are something of which I’ve had far too many of in my life and I’m not welcoming these new and painful feeling that are threatening to engulf me. I have been fighting them off for weeks but I know, or at least I think I know that as soon as I stop rushing around, those emotions will not only wash over me but quite possibly drown me.

Frighteningly, this seems a distinct possibility and I find myself desperately looking for the person that can ‘save’ me. But then, I realise that very person is the one no longer with me other than in spirit and spirit doesn’t seem enough now. I’m not a child anymore and yet right now, I need my Mum more than ever and she isn’t there, and I have to face the painful fact that she will never be here again. Rest in Peace, Mum. Rest in Peace.

 

 

 

APOLOGIES FOR ABSENCE

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Just to let you know that due to serious personal and family problems, I am currently unable to write any posts on my blog and I’ve not been able to read the blogs and posts of my friends here. I apologise for my absence and but I will be back, hopefully, before too long and when these difficult issues are more settled. Thank you for bearing with me in the meantime. Ellie x

FRAGMENTS OF ME

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I will show you

fragments of me

myself

us,

hesitantly

if you are kind

and have patience

to listen

and trust

~~~

I will open cupboard doors

that have been closed

for many years

and bring out

pieces of me

people

and truths

hidden

over my lifetime

~~~

Clumps

have been grabbed,

thrown

to the ground

but I gathered them up

and tucked them away

in my mind

in my heart,

carefully hidden

~~~

These pieces are me.

If you see them

as superfluous,

say they are unimportant,

are of no value

and without meaning

I will gradually

silently

hide them

once more

~~~

I will fold them

securely

in tissue paper

as if they were jewels

and place them

back into the cupboard

never to be seen again,

lost

and gone

forever.