It might have been good to listen to this YouTube video before my last post …
I’m in an awful situation, a predicament in fact, that I cannot escape, no matter how hard I try. I am doomed to failure through my own success. Death would be a very welcome end for me. I fear the devil and going to hell, but I know that our God is a forgiving God and I know that I will surely confess my sins and will do so honestly and willingly. Apart from which, our God is an all-knowing God.
I am a chameleon … a woman of many disguises. I mould myself to be whoever you wish me to be. My being lives only in your imagination. I have no peace or harmony within my mind. I just have a very toxic brain and equally toxic thoughts. I am an imposter … Ellie, yes … but somehow, I appear to be a very skewed version of my very soul.
I am a master of disguise, a keeper of secrets, living a life of self-deception. I figured I knew my very essence, but I was just kidding myself. It would take a very experienced private investigator to fathom me out at my most raw and vulnerable, to expose the very core of me. I feel unclean and wretched … contaminated is a word I have used more times than I can count to describe myself.
I’m a shadow in a mirror. I am a stranger you may pass in the street. I am both the spider that spins the web and also the fly which is caught helplessly in the centre of it all. Jagged glass has nothing on me … come too near, and you will surely be wounded by the shards.
Therefore, approach if you wish but only with extreme caution and entirely at your own risk. I can damage hearts, not willingly or intentionally but inadvertently.
I am what I am, and I detest that fact with a passion so fierce that I could be the ignitor of the very flames of hell themselves. I am what I am … or am I??
Translates as “I am broken but don’t want to hurt you with my pieces.”
Having not having written regularly for some time due to family circumstances, I suddenly find myself writing again and recently this and the previous post (poem), both of which have a lot of meaning for me, are very serious topics.
As those of you who have known me for a while will be aware, I had, some years ago, an emotionally abusive and very damaging relationship with a therapist (who I am no longer with). This affected my mental health hugely and I was hospitalised for a while following this ending.
I still carry a lot of anger about this although I have tried to deal with it in my current counselling. I wrote this poem which I feel, is certainly ‘telling’ of what was happening during those years with her and why I am finding it hard to deal with my anger and find forgiveness as I, perhaps, as I should for my own benefit.
I lie amongst the shadows
The new born of the old
Such innocence destroyed
Yet, none of this foretold
The tales we spun together
Which she led me to believe
Their purpose to deceive
The I Ching books and Angel Cards
Were poetry in motion
* William Blake’s descriptions
Assured of my devotion
My identity was stolen
Soon a puppet on a string
I learned to tell more stories
And I wrote of everything
She pulled me to her bosom
She offered me affection
A love I thought forever
Then came the cruel rejection
I wonder where she came from
As she led me down the lane
Leaving me abruptly
In excruciating pain
- The reference to William Blake refers to the fact that his book, ‘Songs of Innocence and Experience’ was the poetry book that JG gave me as the first of many gifts.
It has taken me a great deal of courage to write this and I know much can be read into this poem so if you have any comments or views, I will happy to reply to them. Thank you for taking the time to read this, Ellie.
Reality she feigns so well
Till the closet doors slam shut
A sureness of the truth becomes
A feeling from the gut
She’s dancing in the shadows
Tar running through her veins
Weaving webs of gossamer
Till nothing pure remains
Just then her hushed emotions
Tucked carefully away
Go howling to the hills
As night follows on from day
The darkness wears disguises
Where her heart and soul had been
Closely guarded secrets
Always clever, never seen
And the devil burns so brightly
When the skeletons come out
Enigmas slowly surfacing
Until there is no doubt
More loss! How much more? It seems like an endless stream of significant other people in my life have departed or are leaving me. I am devastated and heartbroken. I don’t cope well with what feels like abandonment, especially as someone who has BPD or EID (Emotional Intensity Disorder) where this and rejection constantly loom like some ogre behind my shoulder, threatening to suffocate me.
I very recently lost my Mum (as some of you will know). This bereavement came five years after losing my Father. You could say that I should have expected these losses at some time, given that both my parents were in their eighties. However, this is always a major blow even after taking that into consideration.
Now, other important people in my life are leaving, and it’s beginning to get too much to bear. One of my two main Carers left last week, taking early retirement. Now, Helen, my P.A. and Support Worker is moving on after fifteen years with me. She is taking a different career path, and I will be acutely aware of her absence in my life.
Then, finally (at least for the time being) a very close friend announced yesterday that she was moving to the coast, eighty miles away to be nearer her daughter (we have known each other for nearly thirty years). We’ve had many happy times visiting places of interest, chatting over cups of coffee, pouring our hearts out to one another, and in general, putting the world to rights. We can phone or write, but with neither of us having transport or good health, it is unlikely that we will see each other again.
It’s all beginning to get a bit much, I’m lonely and am fighting hard not to fall into a pit of despair and depression. The friends that I do have seem to be mostly cyber-friends, either on Facebook, Twitter or WordPress. At least, in social media, I could put out some ‘friend requests’, but in real life, it’s not quite as easy as that. I guess if I reach the bottom, the only way to go is up, so I’ll try to hang on to that for the time being. Please, bear with me a little longer.
The funeral was beautiful in as far as a funeral can be thought of as ‘beautiful’. White poppies adorned the wicker casket which was interwoven with daisies and wildflowers and not the sombre, traditional dark wooden coffin that many people have. Mum was a great lover of flowers and plants, and she tended her little patch of garden so carefully over her 86 years. It’s sad to think of it being so neglected now as is the old and empty house which was my home for many decades.
It’s been six weeks since my precious Mum passed away. The sadness and loss will never leave us all, but it’s strange how people differ so much in their ways of dealing with grief. My youngest sister is very tearful and is deeply mourning the loss of my Mum. She’s unable to concentrate on her studies, nor cope with her part-time job. My other sister has travelled home again and has thrown herself into her work. However, she is frequently prone to breaking down in racking sobs and is in need of much consolation from her colleagues.
As for me, it’s as if nothing has happened. I think, if anything, I only feel numb and apart from weeping briefly at the first news of my Mum’s death (and I haven’t cried since that day), I am carrying on with life much as usual. I’m keeping myself very occupied and haven’t really stopped since the funeral. My life is as busy as ever and with assistance, I’ve been concentrating on sorting my house out as much as I physically can.
In fact, over the last two weeks, the whole of the downstairs of my house has been decorated. The builders have only just left and there is a huge mountain of mess to clear up. The smell of paint is lingering and I haven’t quite got used the new colour scheme yet. The new curtains are being put up tomorrow along with the new ceiling lights. It’s been ‘all go’ for a few weeks now and I’ve felt quite excited by it all but somehow, also exhausted in equal measure.
I know in my heart that my frantic busyness is just a way of coping, or perhaps, rather a way of not coping or not wanting to face reality because it is all too painful. However, reality has a way of kicking us in the ribs when we try to avoid it. There are Mum’s possessions to deal with and the house to sell. There is so much of everything to be sorted into heaps of ‘deal with now’ or ‘deal with later’.
There are so many practical issues to deal with that I haven’t had time for emotions. Emotions are something of which I’ve had far too many of in my life and I’m not welcoming these new and painful feeling that are threatening to engulf me. I have been fighting them off for weeks but I know, or at least I think I know that as soon as I stop rushing around, those emotions will not only wash over me but quite possibly drown me.
Frighteningly, this seems a distinct possibility and I find myself desperately looking for the person that can ‘save’ me. But then, I realise that very person is the one no longer with me other than in spirit and spirit doesn’t seem enough now. I’m not a child anymore and yet right now, I need my Mum more than ever and she isn’t there, and I have to face the painful fact that she will never be here again. Rest in Peace, Mum. Rest in Peace.
I just wanted to let you know that I haven’t been able to post anything on my blog these last few weeks and probably won’t for a couple more weeks at least, as very sadly, my Mother, who was very sick, passed away last week. I am devastated as I’m sure you can imagine. I hope to be back when everything has settled down. Thank you for your understanding. Ellie x 😥
I miss my Mum. I miss her so much. A death you would think. No, my Mum hasn’t passed away, but she’s had a severe stroke and has been in the hospital for nearly three months now. I miss her presence in my life – she was always there to talk to when I had problems with my children growing up and always in these later years when I’ve been battling with my mental heath.
She used to support me through everything and as the years ticked by, I was the one supporting her (and rightly so). We would talk on the phone for many hours, putting the world to rights and putting each other to rights. We rarely had a cross word.
I have to confess, there have been times when it’s felt a bit of a chore to have to phone my Mum every day, sometimes twice a day in more recent years. I would, perhaps, think, “I want to spend more time with friends” on that particular night or “I’d like to spend the time writing my blog”. Worse still, I’d be keen to text a good friend for a heart-to-heart or get that email written that I’ve been meaning to do for days.
Now, the evenings come, and I find myself thinking, “I’ll just phone to see how ……….” – My sentence is cut short by the stark realisation that my Mum is not occupying the same space as she used to do. Something else is in her place – a horrible silence broken only by memories of how our relationship used to be.
Gone are our chats, our shared laughter and our mutual support. There are no long discussions about what she had planted in her garden that day with the full expectation of seeing her little seedlings and shoots develop into strong, tall plants. She’d tell me how she’d tied them up with green, garden twine against bamboo canes and watch them develop and bloom.
She won’t go back to that house again, nor her beloved garden that was her sanctuary, her escape from the world when life got difficult – not now. She could never manage the stairs, feed herself or live without 24-hour care and yet she’d managed independently since her separation from my father. She had lived in our family home for over sixty years. And to think the grass was being cut by her only two weeks before she had her stroke.
The damage to her brain is so extensive that she’s still unable to communicate verbally or in any other way, and any hope of further improvements is met with serious doubt by the doctors and consultants. The physios, the OTs and the speech and language therapists are not hopeful either. I try to talk to her on the phone when I can’t get there – hoping to get a response but my questions always have the same replies – nothing – it’s heartbreaking.
I’m still travelling up to the City by train to see her at least once a week. The journey is always tough, fraught with difficulties and exhausting but I need to be there. I need to retain that little bit of hope. However, she isn’t even able to acknowledge that I’m there and I wonder where she has gone inside that broken shell of a body.
I feel I should not be grieving as she is still present with me. But I am – I’m grieving the loss of the person that my Mum once was; her presence in my life, her faded personality and her love, care and affection. She is no longer there. But grieving when she is still alive; is that right? Is that acceptable? It is simply grief without death.
Life has had a nasty habit of throwing us curveballs now and then. That ball has certainly knocked me down many times, but I think the important thing is that it’s not how far I fall but whether I can get up again from there. That’s true for everybody at some time, but I feel like I’ve had to do an awful lot of climbing back up over the years.
I don’t feel sorry for myself though as we all have to cope with this experience we call life. I’ve had a significant knockdown just recently which is limiting the amount of time that I have to write my blog – not that you could ever really call me a prolific writer – I’d say more a sporadic writer.
Right now, things are tough and a real challenge. My mum was sick before I wrote my last post – she was in a local hospital with pneumonia. That was bad enough. She is elderly and becoming rather frail now, and illnesses and accidents are becoming a common occurrence now, in her 87th year.
A week later while still on the ward, Mum was found collapsed in the bathroom – she’d had a stroke. The very thing she had always dreaded and said: “It’ll never happen to me”. I thought, until this event, perhaps somewhat naively she was going to be right – that she would live to an even riper old age than she was already.
An ambulance rushed her to the main City Hospital. A friend took me there later that day, and it was a real shock. There was my mum, laying almost helplessly unable to do anything. The whole of one side of her body was lifeless. She couldn’t move her arm or her leg; she couldn’t sit up – not even with support – she lurched sideways into a sad heap and had no balance. Her face had dropped so that her eyelid drooped and what was left of her smile had been taken away.
Two weeks later, she still hasn’t made much progress in her movements. Her speech is slurred, very soft and infrequent as her cognitive function has also been affected so that her brain is working much more slowly to process information. She’s unable to swallow properly so is on a diet of small portions of rather undignified, pureed food which she still manages to pull a face at in an odd way and I just know she’s thinking, “Why am I being given baby food?” I can’t begin to imagine how awful it must be for her to be trapped inside her mind without being able to express herself clearly or barely communicate.
Needless to say, her appetite is almost non-existent, and I can’t say I blame her when food has to be spoonfed into her now crooked mouth. Pureed shepherd’s pie and carrots, having been liquidised within an inch of their life, wouldn’t appeal much to me either.
I am travelling up to the City Hospital every other day (a journey by train in my wheelchair, George of two-and-a-half hours each way). I spend as long as I can with my mum but then return home along with the hoards of workers turning out from their places of work to head homeward. Travelling with an electric wheelchair is not fun when all around me are rushing, pushing and shoving to get home after a long day or a long shift.
As you will have gathered, I might not be able to make an appearance very often at the moment, so please excuse me if I have been unable to read, like or comment on your blog. I have only had the time to sort through the most important emails and phone calls, and it’s likely to be that way for some time. Thank you for your understanding, my friends 😦
Just to let you know that due to serious personal and family problems, I am currently unable to write any posts on my blog and I’ve not been able to read the blogs and posts of my friends here. I apologise for my absence and but I will be back, hopefully, before too long and when these difficult issues are more settled. Thank you for bearing with me in the meantime. Ellie x